Why do I think about this? Because I whole-heartly believe that one day I will be able to have surgery. I don’t know if I’ll be around when there is a cure (one day, there will be. I believe that), BUT there will be a medical solution one day. And here is my list…
A little background. I have fibrodysplasia ossificans progressiva (FOP). It is a bone condition that turns muscle, tissues, & ligaments to bone. Any injury can turn to bone (aka surgery).
Bone on my middle left finger
- Seems silly right? Here’s my thought- it’s low risk + one day I’ll have a ring on the next finger & I don’t want that bone in the way. (I call this bone my FU FOP because it shows when I flip you off)
BOOB REDUCTION
- I haaaateeee my DD’s. loathe them entirely. I’d like a nice solid C cup. I’ve always had big knockers. They hurt my back, bra’s hurt my back & one is migrating under my arm & I have to pull that out of the regular. I just want them goooone!!!
Jaw
- The doctor said this is the only bone holding my jaw closed… Having that opening back would be amazing and potentially life saving.
Hysterectomy- or some other surgery to stop periods/ don’t allow me to have kids
- I’ve been on birth control for 14 years and I want offff!!!!!!!! Maybe I’m over-reacting with birth control in the news. But it can’t be great for me… right??
- 1. my periods are heavy & long asf so getting off isn’t an option
- 2. Biological kids are out of the question, so it really serves no purpose. I would NEVER risk the chance of passing on my FOP to a child.
Left Hip Replacement
- I don’t care about walking… but I want to be able to stand & give someone (my boyfriend) a hug. But walking is cool too…
Left Knee Replacement
- See above. I’d get them done together… But I don’t think that’s an option
– Right Hip Replacement
- Again, see above. But my Right Hip has been locked since I’ve been 7 (21 years) so I really don’t remember having the ability to move my right hip.
Shoulders or Neck??
- I’m not sure it’d be worth investigating, they are probably done for. I’d look into it, but really, having this mobility back wouldn’t be life-changing for me.
My back is done for, there’s no fixing that and I’m fine with that.